Optic nerve hypoplasia

Kristaelmes said on 2012/11/26 at 10:19 pm

Are there any parents out there with s child that has onh or nystagmus i would love to hear from you.

I have a 32 month old that was diagnosed with onh and nystagmus at the age of 6 months hes registered visually impaired

Krista

Fburton said on 26/11/2012 at 10:19 pm

Hi,
I have a 5 month old who has suspected onh, still waiting for MRI to confirm. I don't know what to expect in terms of her development and I'm scared to look online as it always seems to paint the worse case.
Would love to hear how your son has developed, was he delayed in reaching milestones - head control, sitting etc.
Fiona

Anna McAlea-MacQueen said on 10/11/2012 at 11:39 pm

I am a parent with onh, with 4 kids. Hope this gives u some encouragement