Research in progress
Here you can find out about some of the research projects RNIB are currently involved in.
My Voice 2014
RNIB is carrying out new research into the circumstances of blind and partially sighted people in the UK. The information provided by My Voice 2014 will help us focus on what is important for blind and partially sighted people, and help us to put pressure on service provides and policymakers to make positive changes.
The last time a survey like this was conducted was nearly 10 years ago, and this study is going to provide an important update on the evidence and statistics we use. We will get insight into how the recession impacted on employment, how welfare reform has changed what benefits people are receiving, and how cut backs impacted on care services. The survey will cover a wide range of topics from technology to transport and early reach to domestic life. We have written the questions so that we can compare the situation of blind and partially sighted people to the general population.
Over the next six months, RNIB is sending out invitations to nearly 10,000 randomly selected blind and partially sighted people giving them the option to take part in the study. The My Voice UK report will be launched at the UK Vision conference in June, with a range of other reports and resources to follow.
If you have a question about this project you can call us on 0800 028 8188 or email MyVoice@rnib.org.uk.
Circumstances of blind and partially sighted people
In June 2012 the “Circumstances of people with sight loss” report used data taken from the Life Opportunities Survey and Understanding Society to compare the situation of people with sight loss to other disabled people and the general population. Both of these government-funded surveys have now been updated. RNIB and NatCen Social Research are currently conducting secondary analysis of the new data.
The aims of the analysis are to profile the circumstances of adults with sight loss across a wide range of areas; to make comparisons with the rest of the general population; to make comparisons with the rest of the general population after controlling for differences in age and sex; and to identify changes over time between successive waves of the surveys. RNIB will publish a report and tabulation tool of the findings in spring 2015.
Certification and registration of children and young people
In 2013 Dr Tammy Boyce of Imperial College London carried out a qualitative study to examine the certification and registration processes for children and young people (CYP) aged 0-17 and to explore these pathways to support. This replicated a similar study examining the certification and registration processes (C&R) in adults.
The findings from this study demonstrate that the C&R processes for children and young people are highly inconsistent across England. While parents of children who were registered spoke of the benefits this had brought them, not all eligible children were certified by ophthalmologists, and not all local authorities maintained a register of children. The consequences are that children and their families may be missing out on important financial and practical support; and local authorities that are failing to maintain registers may lack key data for strategic planning of local services.
Early intervention and support is essential for babies and young children with vision impairment to support the development of their social, cognitive, communicative and independent mobility skills. We also found that many of the 26 parents interviewed experienced delays in referral for specialist support from education and social care services.
There were examples of good practice, where CYP and their families received good quality support early and in a timely manner and where health, social care and education services had established multi-agency working. We plan to build upon these examples of effective practice by working with the Royal College of Ophthalmologists and other professional groups to ensure that all local authorities and hospitals have an established pathway to support for children and young people with vision impairment and their families, as well as clear certification and registration processes that are understood by staff at all stages of the process.
Secondary analysis of the Millennium Cohort Survey (MCS)
The Millennium Cohort Survey (MCS) is a longitudinal survey of 19,000 children born in 2000. It covers a variety of topics including the children's health, wellbeing, behaviour, education and social experiences. In 2014 RNIB in partnership with the Royal London Society for the Blind (RLSB) commissioned the National Centre for Social Research (NatCen) to carry out statistical analysis of the MCS with the aim of identifying children at the age of eleven with a sight impairment and comparing their experiences with those of the other children in the survey who did not have a sight impairment. This follows an analysis of the MCS carried out in 2012 by NatCen for RNIB and RLSB to compare the experiences of children with a sight impairment at the age of seven with other children. Questions were asked of the children, their parents and teachers. The final report is available from the education research page of the RNIB website. The findings provide important information about the experiences and wellbeing of children with VI at ages seven and 11.
Transitions study: longitudinal study from age 14 of blind and partially sighted young people in the UK
The Visual Impairment Centre for Teaching and Research (VICTAR) at the University of Birmingham is undertaking a 5-year longitudinal study. The current phase of the project which runs from 2012-2015 is funded by the Nuffield Foundation and is looking at the transition of blind and partially sighted young people from the age of 14 years of age through to employment or further education.
The key objectives of the project are:
- To track the process of transition for blind and partially sighted young people from age 14 for the next five years.
- To identify the roles of professionals involved in the transition from education to employment.
- To identify the factors that affect a young person's chances of gaining employment.
The project involves a longitudinal survey of two groups of blind and partially sighted young people in school starting in Years 9 and 11. It is following them as they make the transition from school into further and higher education, training and employment. This project is planned to run from 2010 to 2015. For the next phase of the project, starting in 2015, we plan to work directly with the young people who are participating in the research to develop bespoke advice and information materials for young people and professionals, on transition to further and higher education, training and employment. We will also continue to follow the young people for a further three years as they move from education into employment and independent living.
More information about the Transitions study is available on the University of Birmingham's website.
Also see this article on the Media Access website on ‘Inclusive design and improving access for people with visual impairments', written by one of the Research Fellows working on the project.
Understanding the impact of Personal Independence Payment
In April 2013 the government introduced major changes to the benefit system in the UK. As part of this, Personal Independence Payment (PIP) has replaced Disability Living Allowance (DLA) for people aged 16 to 64.
RNIB, working with Sense and Thomas Pocklington Trust have commissioned a joint team from Birmingham University and NatCen Social Research to investigate the impact of PIP (and potentially wider changes in welfare benefits) on people with sensory impairment. The research involves undertaking in-depth qualitative interviews with a range of people who have sensory loss.
The University of Birmingham have completed the first phase of the research which included fourteen semi-structured interviews which explored people’s experiences of applying for PIP. The first phase of the research is due to be published at the end of the March 2015.
The next stage of the research, delivered by NatCen, is due to begin in the spring. This stage of the research will involve those who are having their DLA reassessed and being moved to PIP.
The project is expected to finish in January 2016.
For further information about any of these projects please contact firstname.lastname@example.org.
Invitations for proposals
RNIB frequently commissions and carries out research studies about people with sight loss and about issues which affect their lives.
Please visit our procurement section for tender information and where invitations for proposals will be advertised.
If we are not making invitations at present, the following organisations may be worth looking into:
Fight for Sight
- Fight for Sight has been funding research into blindness and eye disease for more than 40 years.
Research Councils UK
- Research Councils UK (RCUK) is a strategic partnership of the UK's seven Research Councils.
- Wellcome Trust are a global charitable foundation dedicated to achieving improvements in human and animal health.
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