Eye Info

Rare eye conditions

Summary: Sources of support for people with rare eye conditions.

• Help and support

The eye is a complex part of the body and as a result there are many different conditions that have an impact on sight. Thousands of people each year are diagnosed with the most common eye conditions. However a small number of people have rarer eye conditions.

Unfortunately we are not able to produce detailed medical information about these rarer conditions. Instead, we have developed a directory of charities and support groups who are specialists in helping people who have specific conditions.

Disclaimer - inclusion in this list is not intended as an endorsement and we are not responsible for the accessibility of these external sites.

• Albinism - Albinism Fellowship
• Ehlers - Danos Syndrome - Ehlers - Danos Support Group
• Laurence - Moon - Bardet - Biedl Society
• Marfan Syndrome - Marfan Association UK
• Monocular vision - OneVision
• Micro and Anophthalmia Childrens Society
• The Neurofibromatosis Association UK
• The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE)
• The Sarcoidosis Charity
• Stickler Syndrome Support Group
• Retinoblastoma - The Childhood Eye Cancer Trust (CHECT)
• Toxoplasmosis of the eye - Tommy's campaign information on Toxoplasmosis

Please email webeditor@rnib.org.uk if you know of other organisations that should be added to this list. Please note that it is our policy not to link to informal support groups.

Help and support

The RNIB Helpline deals with all aspects of adapting to sight loss no matter what eye condition you have. If you have practical or emotional worries or want to find out about products or your rights, we can help. Call our Helpline on 0845 766 9999 / 020 7388 2525.

Back to Eye conditions

Content author: eyehealth@rnib.org.uk

Last updated: 14/05/2008 17:40