What's it like to experience CBS?

If you lose your sight, you may start seeing things that aren’t really there. Seeing something that isn’t really there is medically known as having a hallucination. It’s important to remember that CBS hallucinations are only caused by sight loss and aren’t a sign that you have a mental health problem.

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What kinds of things might I see?

Your hallucinations can be of almost anything you can think of – they can range from simple patterns or colours, to vivid and detailed images of people, animals or objects. They appear ‘out of the blue’ and can last for minutes or hours.

Usually they aren’t threatening or unpleasant, but it can be frightening when you first start to have hallucinations. Over time, you may become more comfortable with what you see and you might begin to recognise the same patterns, people or objects appearing in your vision.

Does CBS get better with time?

The hallucinations generally get less frequent over months. For some people they can carry on for longer, and it’s not unusual if you still have an occasional hallucination some years after they first started.

There may come a time when the hallucinations eventually stop, but they might come back or get worse if your sight deteriorates further.

Further information

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