National project launched to improve information for families of children with vision impairment
Tuesday, 18 October 2016
VISION 2020 UK, the umbrella organisation which leads collaboration in eye health and sight loss, marked World Sight Day with the rollout of a national project, aimed at improving the information given to families at the point of diagnosis of their child’s vision impairment.
The diagnosis of a child’s vision impairment can turn a family’s world upside-down. Dealing with the emotions and many questions posed by what the future may hold can be a difficult time. Starting Point aims to signpost families to resources and professionals that can help with the first steps after their child’s diagnosis.
Starting Point can help by:
Explaining a child’s sight condition and treatment
Helping a family understand what their child can see
Providing advice on their child’s development
Putting them in touch with other parents
Connecting a family to national and local support organisations including local authority vision impairment services
Explaining medical jargon and the role of health and social care professionals who can provide support
Giving emotional and practical support for the whole family, and
Advising on how to look ahead, regarding early years, education and leisure activities.
Paediatric ophthalmologists, orthoptists and optometrists will be sent laminated posters for their waiting rooms. They will also receive leaflets they can give to families, which direct parents to a web-based resource hub where they can access trusted source information and contact details for other supporting organisations.