“My advice is to make the most of the things that you can do. If possible, get involved with things that you’d never thought of.”
I was about 27 or 28 years old and climbing the Himalayas when I noticed something was wrong. My grandmother had retinitis pigmentosa (RP) so I knew the symptoms. I was referred to Moorfields Hospital, had all the tests and they confirmed it was RP. A few months after my diagnosis, I found out my role was being made redundant. RNIB’s sight loss adviser at Moorfields helped me register as partially sighted so I could benefit from my employers’ Personal Health Insurance scheme. I receive Personal Independence Payment (PIP) but other than that, I’m independent and manage mostly on my own. My advice is to make the most of the things that you can do. If possible, get involved with things that you’d never thought of. I don’t climb anymore, but I still fish, shoot and I also re-started painting. As a visually impaired person, I know the challenges people face and a legacy is really putting something by that will help others in future.