It can be overwhelming in the early days, but there is lots of support out there to help families of children with a vision impairment, including those with complex needs - you are not alone.
Getting the help you need
The person who can help most locally, is a QTVI, based in your VI service. They will support you and your child from birth onwards. The eye clinic should have automatically referred your child to a QTVI, but if you haven’t heard from one, search RNIB Sightline to find your local VI Service, or contact our Helpline on 0303 123 9999.
Parent support groups are a great way to meet other parents for practical and emotional support - ask your VI service for local contacts, or use RNIB Sightline or our Helpline on 0303 123 9999.
Our Information for Parents guide has information about how the eye works and details of vision and eye conditions that cause vision impairment. It also contains a large amount of guidance about supporting your child’s growth and development.
You may also find it helpful to use the Early Support Developmental Journal, to guide you through your child’s first months and years, giving you ideas for activities and helping you to track progress. Any professionals working with you can also contribute to the Journal.