We have some good news. Last week NHS England published its commissioning policy which recommended the use of Humira (adalimumab) in children with severe refractory uveitis.
North East volunteer campaigner Gerry Taylor has campaigned successfully to get his local pharmacy in Durham to print the directions label on his medication in large print.
Gateshead Council has improved the way it assesses the eye health needs of residents, including more information on the main causes of sight loss and highlighting the link between sight loss and other health issues.
NHS England has refused to fund anti-TNF treatments (Humira and Remicade) for severe refractory uveitis in children and adults which means no further patients can access these treatments. This only applies to England as treatment is available in Scotland and Wales.
We've been lobbying Shropshire Clinical Commissioning Group for many months to ensure that patients with wet age-related macular degeneration can access all the National Institute for Health and Care Excellence approved treatments for their condition.