This section has been written based on what parents tell us they would like to know. It includes practical advice, ideas and contacts for parents and families of children with vision impairment.
We know it is a worrying time - there's no "normal" response to finding out your child has a sight condition - people respond in different ways. Here you will find important contacts and information to guide and support you with those first steps.
Our information and advice for parents is also available in a downloadable booklet for those who prefer offline or hard copy material:
Information about vision impairment: Guide for parents
Starting Point is a leaflet for parents of babies and children who are newly diagnosed with an eye condition. It is published by Vision UK and introduces Sight Advice FAQ which you can use to ask particular questions about your child’s diagnosis and the support and services available to you. Starting Point is given to families in eye clinics. You can also download it from the Vision UK website.
There are many ways you can encourage independence, and help your child to move around more confidently, begin to look after their own needs and feel more confident at mealtimes. Your child may need to be taught skills that others do by imitation, and we tell you about the people who can help with this.
Children with vision impairment are entitled to support for their learning from birth onwards by a specialist teacher called a QTVI. If your child has complex needs, they will usually be supported in a special school in your local authority – find out more on education and learning.
Your child may find the NHS website Eyesight really useful. Developed by Moorfields Hospital, this accessible and easy to understand site is written specifically for children. Eyesight contains age-specific patient information, activities and fact sheets on eye conditions, like childhood glaucoma, squint and myopia, for 3-19 year olds.
Find out about financial support, grants and allowances for families of children with a vision impairment.
We have advice and guidance for young people as they make the transition from school into further or higher education, employment and adult support services. See our Young People's section for more details.