Shop RNIB Donate now

Rare eye conditions

The eye is a complex part of the body and as a result there are many different conditions that have an impact on sight. Thousands of people each year are diagnosed with the most common eye conditions. However, a small number of people have rarer eye conditions.

We are not able to produce detailed medical information about all eye conditions. Instead, we have developed a directory of charities and support groups who are specialists in helping people who have specific conditions.

Disclaimer: inclusion in this list is not intended as an endorsement and we are not responsible for the accessibility of these external sites.

Please email [email protected] if you know of other organisations that should be added to this list.

Please note that it is our policy not to link to informal support groups.

Help and support

The RNIB Helpline deals with all aspects of adapting to sight loss no matter what eye condition you have. If you have practical or emotional worries or want to find out about products or your rights, we can help. Call our Helpline on 0303 123 9999 or email [email protected].

Page last reviewed: Sept. 1, 2022

Next review due: Jan. 31, 2023