Parents tell us that one of the most difficult parts of finding out that their child has a vision impairment (VI) is knowing how to talk about it with their child.

This can be even more of a challenge if the eye condition is progressive and means that vision will get worse over time. 

Recent Transitions to adulthood research shows that young people have different levels of understanding of their own eye condition, would often like to know more than they do, and have had varying levels of opportunity to talk to other people to find out.

Tough talks

We've produced this guidance to support parents and carers as they think about this issue. We've spoken to parents of children with VI and young people and adults with VI who have told us what was most helpful to them.

Download the Tough talks guide (PDF, 1MB)

Download the Tough talks guide (Word, 127KB)

Print copies are available by emailing [email protected].

Emotional support

We’ve developed a series of podcasts for parents and carers, in collaboration with Fight Against Blindness, covering a number of topics that our families frequently ask about. You can access these on our dedicated page for emotional wellbeing podcasts.

Our Sight Loss Advice pages also have a wealth of resources that anyone with sight loss and their friends and family can use. We have Talk and Support groups, resources and guides, and a counselling service that anyone aged over 11 can use. For more information, visit our wellbeing pages.

Further support

Our team of regionally based Children, Young People and Family Support Officers are here to help. We can provide a listening ear or a sounding board if you need it, as well as information and advice when you’re ready for it. If you can’t find what you’re looking for, or you’d like to talk further about any of the above, then please get in touch with us by emailing [email protected] or calling us on 0303 123 9999.